About Survivorship A to Z
HIV/ AIDS
Why We Exist
Our site exists because the best chance for surviving and thriving beyond a cancer diagnosis is to be an educated consumer. We learned the hard way that there is no single place which has unbiased information covering sthe financial, legal and practical aspects of living through all stages of life after a diagnosis - starting with summaries and much less on an individualized basis. Our goal is to help you take control by providing in one place:
- All the practical, financial and legal information needed to thrive in the "new normal" that exists after a life-changing diagnosis - starting with diagnosis, going through a hopefully long life, and including end-of-life that as human beings we will all face one day.
- Information on a personalized basis so you don't have to read about stuff that doesn't apply to you - and so you'll know about all that does, including subjects most people wouldn't ordinarily think about.
- Tools to help you keep track of information you need and to make complicated decisions more simple. For example, how to choose the best treatment for you and your lifestyle or how to choose among health insurance policies from the point of view of a person with your health condition. (Yes, you still can buy health insurance - life insurance too!)
- Information in different levels so you can learn what you need to know when you need to know it. For instance, you can read a summary if that is all you need. At the other extreme, our information digs down to form letters and how to complete forms such as the Social Security Disability Insurance application.
We encourage you and all other users to share what you learn so other people don't have to waste precious time reinventing the wheel or going up blind alleys.
Who We Are
Survivorship A to Z is an independent not-for-profit corporation consisting of a small but dedicated staff, volunteer experts, volunteers living after a diganosis of HIV disease, patient advocates and caregivers.
Survivorship A to Z was founded by David S. Landay after his partner died of HIV and both parents died of cancer. You can learn more about David by clicking here.
Where Our Information Comes From
Information comes from independent experts, nationally recognized law firms, research, government documents, caregivers, patient advocates and patients. We encourage all our visitors to add information.
Where Our Funding Comes From
Grants from Johns Hopkins and the City of New York, as well as donations from individuals and foundations, permitted full time work on the site to start in March 2006.
Since then, a batch of volunteers have donate their time and services. They are mentioned by name on our Thank You pages. This site wouldn't exist without their unflagging efforts. We are very grateful to each and every volunteer.
We depend on donations of time and money from people like you. We hope that once you use our site and see the value to you and people like you, that you will give generously to help us with our work., including personalizing our site even more.
Our Board Of Directors
Our Board consists of unpaid volunteers who have expertise in finance, law, and charitable work.
No director has a direct or indirect financial interest in our work.
Board members include:
- Michael E. Rudder .......... President, KRh Thermal Systems, Inc.
- David S. Landay .......... Executive Director
- Barry M. Shulman, Esq... Scolaro, Shulman, Cohen, Fetter and Burstein
The Staff
Managing Editor ................. David S. Landay, Esq.
Chief Programmer ............... Preston Mark Stone
Chief Designer .................... David Merfield
Systems Supervisor ............ Gerry Oxford (A volunteer)
Accountant ....................... Bernard Dikman, CPA
Official Launch Date and Dedication
Our website was launched June 9, 2008
This site was dedicated in memory of David E. Hankermeyer, November 12, 2007.
Our Contact Information
E MAIL:
info@survivorshipatoz.org
SNAIL MAIL:
Survivorship A to Z, Inc.
353 West 56th Street #9N
New York, NY 10019
TELEPHONE:
212.586.5600 212.586.5600